Data Resource

Lung Cancer Genetics Study Data Showcase

The Lung Cancer Genetics Study Data Showcase contains summary data and database documentation to help researchers complete Data Access Requests for the full de-identified, individual-level dataset. For complete application instructions, please click here

Dataset Documentation

Please reference this document for information about the survey and genotyping data in the Lung Cancer Genetics Study Database.

Survey Documentation

Baseline Survey Text

Participants complete this survey once.

Baseline Survey Codebook

Please reference this codebook for baseline survey data elements.

Data Version: 2025.07.28

Selected Summary Data

Please reference this document for summary data related to this release of the Lung Cancer Genetics Study Database.

Research Consents

All participants in the Lung Cancer Genetics Study review and consent to the following two research consent documents.

23andMe Research Institute Research Consent

This consent document governs all 23andMe Research Institute research activities.

Lung Cancer Genetics Study Consent

This consent document governs the Lung Cancer Genetics Study specifically.

Resources for Obtaining Full Access

Please complete and return these forms to data@susanwfoundation.org with requested documentation.

Data Access Request Template

Privacy and Security Questionnaire Template

Use Agreements & Policies

Data Use Agreement and End User Agreement Templates

Once a Data Access Request has been approved, the requesting PI and/or requesting PI’s institution must sign a Data Use Agreement. All Approved Researchers named in the Data Access Request must sign an End User Agreement prior to accessing study data. SWF is not able to accept revisions to these agreements.

Publication and Presentation Policy

Please reference this document while planning any public disclosures of results generated using Lung Cancer Genetics Study data.

Data Use Reporting Requirements & Annual Reporting Template

Please download and complete this form and submit annually by the date specified based on the date of execution of your Data Use Agreement.

Got Questions?

Contact data@susanwfoundation.org